Auzair s Fast Track Research Fund

61A Great Suffolk Street, SE1 0BU London, United Kingdom


07920 746058



About

The Arshad family has set up Auzair s Fast Track Research Fund, to raise funds for Muscular Dystrophy Campaign-funded research.

Founded

Auzair s Fast Track Research Fund was founded in 2010

Company Overview

Auzair s Fast Track Research Fund The Arshad family has set up Auzair s Fast Track Research Fund, to raise funds for Muscular Dystrophy Campaign-funded research into Duchenne muscular dystrophy. Auzair, who is now 16, was diagnosed with Duchenne muscular dystrophy when he was four years old. His mum and dad, Mohammed and Parveen, along with Auzair s brothes Khurm and Usi, have set up the fund. Despite Auzair s regular visits to their GP, healthcare professionals did not share the family s concerns over Auzair s mobility. It was only when a nurse at Auzair s school expressed concern that he may have a muscle-wasting condition that he was sent for tests. These tests confirmed that Auzair did in fact have the severe muscle-wasting condition, Duchenne muscular dystrophy. Auzair s oldest brother, Khurm, said: Muscular Dystrophy Campaign was involved from day one of Auzair s diagnosis. The charity s care advisor, Jan Smith, was imperative to guiding us through the first four or five years. Without her guidance, we would have been lost and many of our questions would have remained unansweruzair has lost all but a little mobility in his hands and is now a full-time wheelchair user. His physical and medical needs require round-the-clock assistance; however this does not stop Auzair leading an independent and full life. He aspires to study at university, work in London or New York and travel the worldair has an excellent quality of life because we, as a family, strive to give him the care that he requires. Aside from this, the only thing we can do is raise as much money as possible to fund ground breaking research in the hope that one day they are able to develop a treatment to either stop or slow down the progression of Duchenne muscular dystrophy. We know that Auzair will only be able to fully realise and achieve his ambitions in life with the help of treatmehurm and his family have been fundraising for more than three years, and have raised an incredible £56,000 through a series of events. This March they will be holding their fourth annual Authentic Indian Banquet, and are expecting over 300 guests. All of the funds raised by the family will directly fund Dr Wood and PhD student Corinne Betts at the University of Oxford. This particular research into Duchenne muscular dystrophy is investigating ways to improve upon the current exon-skipping technology.

Mission

This coming year we hope to double our existing fundraising total and raise another £50,000!

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